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Panorama, tonight on BBC1 @8.30pm meets families who spend their lives caring for children with complex disabilities. The Wright family, whom I have been following for the last 9 months, is a family who deal with these issues every day and struggle with limited resources to provide the everyday care and experiences we all take for granted. Last week I was able to accompany the family on a camping trip in the woods and I was completely in awe of the organisation, team work and commitment I observed to make a trip such as this possible. I personally find the planning and packing for such a weekend taxing enough with two young children of my own but to be able to plan for and achieve such a task with an additional child with severe complex needs who requires 24 hour care is unimaginable. Sleeping, feeding, changing, medication, washing, access are just a few of the things to be considered and the extra equipment to make it possible must have made a list as long as the motorway we journeyed on to get there. When looking at these images and on watching the Panorama programme, perhaps we might all think about the unexpected impact on their lives when their children were born and consider the support needed to make these and other such simple and valuable family experiences possible for them.
1 Comment
Jan Hooks
16/7/2018 11:10:49 pm
You’ve captured some more beatific moments, thank you.
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