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It is really important to me to share the stories behind these images and so here is the first.
This image taken in 2018 shows Kyle, his mother Carine and his dog, Charlie at their home in Southend-on-Sea. Carine had a normal pregnancy and carried full term but devastatingly, Kyle was starved of oxygen during childbirth which resulted in severe Quadriplegic Athetoid Cerebral Palsy. Nobody could have predicted this and Kyle’s family have had to come to terms with the loss of the life they expected for Kyle and the reality of the huge challenges they have had to face due to his medical conditions. Kyle requires 24 hour care. He cannot walk, eat, communicate or take part in any activities without the support of others and very specialist equipment like the walker in this image – things which are not easily come by and need to be fought for, begged for or fundraised for if Kyle is to be ‘able’. Sadly, this is the case for so many. Despite small changes we are still living in a society where we obsess over luxury items while others struggle for the simple facilities which enable them to fulfil their basic human rights. Carine is incredible and has battled hard to ensure that Kyle has the same opportunities that his sibling and friends enjoy. Kyle is an incredible character and is described by his mother as determined, stubborn, cheeky, feisty, adventurous, funny and clever ‘but’, she says, ‘sadly for him, he’s stuck in a body that doesn’t work for him at all.' Now 12, Kyle is as determined and fearless as ever. I have recently seen photographs of him on adapted skis in the Canadian mountains where the family have since relocated. I thank them wholeheartedly for sharing their story and hope that this image will represent those families in the UK whose lives have become something very different and far more difficult than they could have ever imagined.
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